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Deafblindness

Condition of little or no useful sight and little or no useful hearing

Summary

Condition of little or no useful sight and little or no useful hearing

Deafblindness is a condition of little or no useful hearing and little or no useful sight. According to the "Nordic definition", "deafblindness is a combined vision and hearing impairment of such severity that it is hard for the impaired senses to compensate for each other. Thus, deafblindness is a distinct disability." Different degrees of vision loss and auditory loss occur within each individual. Because of this inherent diversity, each deafblind individual's needs regarding lifestyle, communication, education, and work need to be addressed based on their degree of dual-modality deprivation, to improve their ability to live independently. In 1994, an estimated 35,000–40,000 United States residents were medically deafblind. Laura Bridgman was the first American deafblind person known to become well educated. Helen Keller was a well-known example of an educated deafblind individual. To further her lifelong mission to help the deafblind community to expand its horizons and gain opportunities, the Helen Keller National Center for Deaf-Blind Youths and Adults (also called the Helen Keller National Center or HKNC), with a residential training program in Sands Point, New York, was established in 1967 by an act of Congress.

The deafblind community has its own culture, comparable to those of the Deaf community. Members of the deafblind community have diverse backgrounds but are united by similar experiences and a shared, homogeneous understanding of what it means to be deafblind. Some deafblind individuals view their condition as a part of their identity.

Epidemiology

The medical condition of deafblindness occurs in different forms. For some, this condition might happen congenitally from birth as a result of genetic defect, for others it happens suddenly due to a form of illness or accident that results in a modality deprivation of either vision or hearing, or both. A person might be born deaf and become blind at a later stage in life, or vice versa. In any given case of deafblindness, many possible onsets and causes of this condition exist; some happen gradually, others happen unexpectedly and suddenly. The diagnosis of deafblindness could be medically classified into specific types based on one's symptoms and causes.

The two overarching types of deafblindness are congenital and acquired.

Congenital deafblindness: the condition of deafblindness from birth, as occurs in rubella embryopathy, and other conditions:

  • Pregnancy complexities
    • Effects of alcohol/drugs
      • Fetal alcohol syndrome
    • A result of prematurity
    • Causes from illness/infection
      • Rubella
      • AIDS
      • Cytomegalovirus
      • Congenital syphilis
      • Toxoplasmosis
  • Genetic conditions (evident from birth)
    • Anomalies/syndromes (numerous genetic defects may contribute to one's medical condition of deafblindness, of which some of more well-known syndromes are listed)
      • CHARGE syndrome
      • Cochleosaccular degeneration with progressive cataracts
      • Down syndrome
      • Marshall syndrome
      • Stickler syndrome
      • Trisomy 13 Acquired deafblindness: condition of deafblindness developed later in life
  • Genetic conditions (evident at a later stage in life)
    • Usher syndrome
    • Alport syndrome
  • Age-related loss of modality (vision or auditory or both)
  • Illness, such as meningitis
  • Somatic injuries
    • Brain damage/trauma
    • Stroke
    • Permanent physical damage (relating to vision or hearing)

Communication

Deafblind people communicate in many different ways as determined by the nature of their condition, the age of onset, and what resources are available to them. For example, someone who grew up deaf and experienced vision loss later in life is likely to use a sign language (in a visually modified or tactile form). Others who grew up blind and later became deaf are more likely to use a tactile mode of spoken/written language. Methods of communication include:

  • Use of residual hearing (speaking clearly, hearing aids, or cochlear implants) or sight (signing within a restricted visual field, writing with large print)
  • Tactile signing, sign language, or a manual alphabet such as the American Manual Alphabet or Deaf-blind Alphabet (also known as "two-hand manual") with tactile or visual modifications
  • Interpreting services (such as sign-language interpreters or communication aides)
  • Communication devices such as Tellatouch or its computerized versions known as the TeleBraille and Screen Braille Communicator.
  • Tadoma, a tactile modality
  • Square script, a method of writing along tactile guidelines
  • Protactile, a tactile language related to American Sign Language in the Francosign language family

Multisensory methods have been used to help deafblind people enhance their communication skills. These can be taught to very young children with developmental delays (to help with pre-intentional communication), young people with learning difficulties, and older people, including those with dementia. One such process is Tacpac.

Deafblind people often use the assistance of people known as support-service providers (SSPs), who help the deafblind with tasks such as routine errands, guiding the deafblind through unfamiliar environments, and facilitating communication between the deafblind person and another person.

Technology

A graphic Braille display can be used in sensing graphic data such as maps, images, and text data that require multiline display capabilities such spreadsheets and equations. Graphic braille displays available in the market are DV-2 (from KGS), Hyperbraille, and TACTISPLAY Table/Walk (from Tactisplay Corp.). For example, TACTISPLAY Table can show 120*100 resolution refreshable braille graphics on one page.

References

References

  1. Keller, Helen. (1938). "Helen Keller's Journal, 1936-1937". Doubleday, Doran & Co.
  2. (2005). "Review of the Radical Lives of Helen Keller". Journal of American History.
  3. The nordic definition on deafblindness [https://norden.diva-portal.org/smash/get/diva2%3A1920866/FULLTEXT01.pdf]. norden.diva-portal.org. Retrieved 2025-11-01.
  4. Dammeyer, Jesper. (November 2014). "Deafblindness: a review of the literature". Scandinavian Journal of Public Health.
  5. Deaf-Blindness, NCDB: National Center on. "Overview on Deaf-Blindness".
  6. "NCDB Selected Topics: Deaf-Blindness Overview". Nationaldb.org.
  7. Deaf-Blindness, NCDB: National Center on. "Culture and Community".
  8. "Identity – DeafBlind Connection – Minnesota State Academies".
  9. "Conditions/Syndromes {{!}} Deafblind Information". Deafblindness Support Services.
  10. "Causes".
  11. "Etiologies and Characteristics of Deaf-Blindness". National Center on Deaf-Blindness.
  12. "No olvides la rubéola {{!}} APASCIDE".
  13. "HKNC: Common Causes of Combined Vision and Hearing Loss".
  14. "What is a SSP?". [[Helen Keller National Center]].
  15. "Home of KGS Corporation". KGS Corporation.
  16. "Hyperbraille". Hyperbraille.
  17. "Home of Tactisplay Corp.". Tactisplay Corp..
  18. "Full Page Braille Display being Launched by Tactisplay Corp.". Tactisplay Corp..
  19. "This video shows operation of the device.".
  20. "The Miracle Worker (2000)". imdb.com.
  21. (2019-08-02). "Haben Girma Is a Trailblazer for the Deaf and Blind". [[The Wall Street Journal]].
  22. Zapke, Angela. (2019-11-29). "New Film Features First DeafBlind Actor in a Lead Role".
  23. "Feeling Through 2019 Full Cast and Crew".
Wikipedia Source

This article was imported from Wikipedia and is available under the Creative Commons Attribution-ShareAlike 4.0 License. Content has been adapted to SurfDoc format. Original contributors can be found on the article history page.

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