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Autism Society of America
Non-profit organization in the USA
Non-profit organization in the USA
| Field | Value |
|---|---|
| name | Autism Society of America Inc. |
| tax_id | 52-1020149 |
| status | 501(c)(3) nonprofit organization |
| founded | 1965 |
| founders | Bernard Rimland, Ruth C. Sullivan, and others |
| headquarters | Rockville, Maryland, United States |
| leader_name | Tracey Staley |
| leader_title | Chair of the Board of Directors |
| leader_name2 | Joe Joyce |
| leader_title2 | Chief Executive Officer |
| employees | 43 |
| employees_year | 2023 |
| volunteers | 5 |
| volunteers_year | 2023 |
| revenue | $5,641,870 |
| revenue_year | 2023 |
| expenses | $6,197,022 |
| expenses_year | 2023 |
| endowment | $50,000 (2023) |
| subsidiaries | Autism Society of America Foundation |
| formerly | National Society for Autistic Children |
| website |
The Autism Society of America (ASA) is an American non-profit organization whose stated goal is "to improve the lives of all affected by autism." by Bernard Rimland together with Ruth C. Sullivan and a small group of other parents of autistic children. Its original name was the National Society for Autistic Children; the name was changed to emphasize that autistic children grow up.
History
Vaccines and autism
Main article: Vaccines and autism
In 1998, anti-vaccine activist Andrew Wakefield released a fraudulent study that falsely linked the MMR vaccine to autism (which was formally retracted by its publisher in 2010). Subsequent to its release, other scientifically unsupported theories (including "vaccine overload" and the bodies of autistic children being unable to eliminate thiomersal) increased in popularity. In the decades since, the ASA and its state and regional chapters have platformed, honored or elevated to leadership individuals who have made these or other unsupported claims (including those who have falsely argued or speculated that autistic children could widely benefit from chelation or other detoxification therapies). This has included the following individuals:
- James B. Adams
- Dr. Kenneth A. Bock
- Dr. James Jeffrey Bradstreet
- Doreen Granpeesheh
- Dr. Martha Herbert
- Dr. Bryan L. Jepson
- Dr. Daniel A. Rossignol
- Jeff Sell, Esq.
- Stephen Shore
- Lauren W. Underwood In 2016, Adams used his position as president of the Autism Society of Greater Phoenix to promote the release of Wakefield's anti-vaccination film, Vaxxed, and told the Phoenix New Times that he believed vaccines could cause autism in rare cases. As of 2025, Adams still sits on the chapter's board of directors and serves as a scientific advisor to the Rimland-founded Autism Research Institute.
Granpeesheh and Jepson were openly associated with the Wakefield-founded Thoughtful House Center for Children at the time they appeared at various ASA annual conferences in the mid- to late 2000s, and Granpeesheh appeared in Vaxxed in 2016. Granpeesheh last sat on the ASA's national board of directors in 2009, and she and Herbert were most recently credited as advisors to the ASA in its 2021 annual report.
In 2003, while serving on the ASA's national board of directors, Shore told USA Today that vaccines and thiomersal were potential catalysts for autism and that he believed autistic traits closely resembled the symptoms of mercury poisoning. Shore also said he believed that removing thiomersal from vaccines was a positive step, "Because you shouldn't be injecting mercury into anyone." In the 2006 book Understanding Autism for Dummies, Shore and his co-authors falsely speculated that the appearance of autistic traits in toddlerhood might be caused by certain vaccines (such as the MMR vaccine), certain vaccine ingredients (such as thiomersal) or too many vaccines given within a short period and suggested parents consider an alternative vaccination schedule.
The ASA platformed Wakefield, himself, at its 2007 annual conference.
In March 2019, the ASA made a formal statement affirming that there was "never any credible medical or scientific evidence linking vaccinations with autism" and that vaccines were "safe, effective, and life-saving." In April 2025, ASA leadership cosigned an open letter affirming that there was no causal link between vaccines and autism in response to controversial statements made by U.S. Secretary of Health and Human Services and anti-vaccine activist Robert F. Kennedy Jr.
Branding
The ASA and its state and regional chapters have historically utilized controversial puzzle-piece imagery in their branding, including a trademarked puzzle-piece ribbon (introduced in 1999) and a graphic of a boy's head interwoven with puzzle pieces. Some critics and researchers claim these types of symbols stigmatize autistic people because they portray them as incomplete, mysterious or a problem in need of fixing and evoke brokenness and bafflement.
In 2021, the ASA announced it was removing puzzle-piece imagery from its branding and had chosen a new logo consisting of interwoven, multicolored lines ("threads"), which the organization believed would emphasize "connection" and "create a calm, visual stimulation." As of 2025, the ASA has not fully retired its trademarked puzzle-piece ribbon.
Founders
Bernard Rimland
Main article: Bernard Rimland
Bernard Rimland (November 15, 1928 – November 21, 2006) was an American research psychologist, writer, lecturer, and influential person in the field of developmental disorders who is known for promoting autism-related pseudoscience. In 1964, Dr. Bernard Rimland wrote a book, Infantile Autism, that convinced others working in the field that autism is a physiological disorder, not a mental or emotional problem. Rimland was a founder of the ASA in 1965, but left to create the Autism Research Institute in 1967. He later promoted several theories, which have since been disproven, about the causes and treatment of autism, including vaccine denial, facilitated communication, chelation therapy, and claims of a link between secretin and autism. Rimland eventually returned to ASA leadership, last serving as an honorary member of the organization's board of directors the year he died.
Ruth C. Sullivan
Main article: Ruth C. Sullivan
Ruth C. Sullivan (April 20, 1924 – September 16, 2021) was an American organizer and advocate for the education of autistic people. Sullivan was a founder and the first president of the ASA, but later left to start the Autism Services Center in Huntington, West Virginia. Sullivan eventually returned to ASA leadership, last serving as an honorary member of the organization's board of directors in 2008.
References
References
- "[https://projects.propublica.org/nonprofits/organizations/521020149/202432829349301003/full Form 990: Return of Organization Exempt from Income Tax]". ''Autism Society of America Inc.'' [[ProPublica]]. December 31, 2023.
- "[https://www.proquest.com/docview/410212721/ Some Key Dates in Autism History]". ''The Washington Post'' July 1, 2008. p. F5.
- Sandomir, Richard. (2021-09-30). "Ruth Sullivan, Advocate for People With Autism, Dies at 97". The New York Times.
- Joyce, Carissa. (2022-02-03). "Tracey Staley Selected as Chair of the Board of Directors for Autism Society of America".
- Allred, Delancy. (2025-07-08). "Autism Society of America Disheartened by Passage of Budget Reconciliation Bill".
- Allred, Delancy. (2025-09-25). "Autism Society of America Announces new CEO, Joe Joyce".
- (July 2025)
- Eggertson, Laura. (2010-03-09). "Lancet retracts 12-year-old article linking autism to MMR vaccines". CMAJ.
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- Philadelphia, The Children's Hospital of. "Vaccine Ingredients: Thimerosal {{!}} Children's Hospital of Philadelphia".
- Brent, Jeffrey. (2013-12-01). "Commentary on the Abuse of Metal Chelation Therapy in Patients with Autism Spectrum Disorders". Journal of Medical Toxicology.
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- Adams, James B.. (2005-07-14). "The Autism-Mercury Connection".
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- "Is autism in the genes? Or the environment?".
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- "Autism treatment: Risky alternative therapies have little basis in science".
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- (2008-07-10). "Autism across the Levels: Brain, Body, Behavior, Genes, Environment and Treatment".
- (2008-07-12). "ABA and Biomedical Interventions to Facilitate Improvements Among Children with Autism: A Dual Approach".
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- "Awards and Accolades – Dr. Doreen Granpeesheh".
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- (2010-04-14). "New Research Investigates Link Between Autism And Toxic Chemicals".
- Jepson, Bryan L.. (2007-07-14). "Models of Clinical Practice".
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- Bateman, Chris. (2013-04-22). "Autism – mitigating a global epidemic". South African Medical Journal.
- Jepson, Bryan L.. (2009-07-25). "Body Features: Multifactorial Symptoms".
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- Rossignol, Daniel A.. (2008-07-10). "The Use of Hyperbaric Oxygen Therapy in Autism".
- Sell, Jeff. (2008-07-11). "A Father's View of Autism".
- Vock, Daniel C.. (2008-04-30). "Parents Turn to States for Autism Help • Stateline".
- Ciavaglia, Jo. "Asperger's presents new challenges".
- "Stephen M. Shore {{!}} Faculty Profiles {{!}} Adelphi University".
- Morgan, John. (2003-04-15). "John Schneider promotes Asperger's Syndrome awareness". [[USA Today]].
- (2006). "Understanding autism for dummies". Wiley.
- Underwood, Lauren W.. (2007-07-14). "Understanding Biomedical Treatments and Behavioral Therapies".
- "ARI Scientific Advisory Board".
- Jones, Aidan. (2010-02-19). "MMR vaccine doctor Andrew Wakefield quits autism centre". The Guardian.
- (December 31, 2009). "Form 990 for period ending December 2009".
- "The connection is you: 2021 Annual Report".
- (2007-07-14). "Closing Keynote Session".
- "Statement of the Autism Society of America on Vaccine Safety - Autism Society". Autism Society.
- (2025-04-17). "Leading Autism Organizations Release Joint Statement on Upholding Scientific Integrity and Supporting the Autism Community - Autistic Self Advocacy Network".
- Diament, Michelle. (2025-04-21). "Kennedy's Comments About ASD Draw Backlash".
- (February 2018). "Do puzzle pieces and autism puzzle piece logos evoke negative associations?". Autism: The International Journal of Research and Practice.
- (2011). "Infantilizing Autism". Disability Studies Quarterly.
- Grant, Aimee. (2025-04-10). "Why the autism jigsaw puzzle piece is such a problematic symbol".
- (15 November 2021). "Autism Society's New Brand Launch".
- Roth, Kristyn. (2021-11-15). "New Brand Launch FAQ's".
- "Autism Society of America {{!}} NY DMV".
- (July 2025)
- Carey, Benedict. (November 28, 2006). "Bernard Rimland, 78, Scientist Who Revised View of Autism, Dies". New York Times.
- (2006-12-31). "Form 990 for period ending December 2006".
- Roth, Kristyn. (2021-09-17). "Passing of the Autism Society's Co-Founder and First Elected President Ruth Sullivan".
- (2008-12-31). "Form 990 for period ending December 2008".
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